30 Things About My Invisible Illness You May Not Know1. The illness I live with is:
PCOS (Polycystic Ovarian Syndrome) and Infertility2. I was diagnosed with it in the year:
2002… it was early February after a brain MRI scare in late January.3. But I had symptoms since:
the early 1990’s but probably dating back to 1987, though these symptoms are realized in retrospect.4. The biggest adjustment I’ve had to make is:
This is too personal to share; only a handful of people will ever know.5. Most people assume:
I’m just fat because I like to eat.6. The hardest part about mornings are:
Getting out of bed. In addition to the PCOS, I also deal with insomnia and sciatica, chronic low back pain and oftentimes migraines. So it’s physically really difficult just to get out of bed.7. My favorite medical TV show is:
It used to be ER. Last season, I really liked Mercy. And who can forget M*A*S*H?8. A gadget I couldn’t live without is:
it begins and ends with an “R”.9. The hardest part about nights are:
Insomnia and disruptive sleep.10. Each day I take
6-10 pills and/or vitamins.
(Though I stopped all meds cold turkey when the kids came; I’ll be restarting them all by the end of this month after I visit my doctor Friday.)11. Regarding alternative treatments I:
am not open to acupuncture or drinking teas that make the taste buds run screaming from my tongue but would consider other options.12. If I had to choose between an invisible illness or visible I would choose:
Invisible; I don’t like drawing attention to myself.13. Regarding working and career:
Working is really hard when my emotional state is sooo tied up in my disease and all the side effects from it. Exhausting doesn't begin to cover it.14. People would be surprised to know:
Having kids doesn’t change the way infertility continues to make me feel.15. The hardest thing to accept about my new reality has been:
I don’t know if I’ve accepted it fully or not but the hardest thing, by far, is the infertility.16. Something I never thought I could do with my illness that I did was:
Lose weight. Then it came back. But I’ve done it once so I can do it again, right?!17. The commercials about my illness:
What commercials? There are none.18. Something I really miss doing since I was diagnosed is:
Camping.19. It was really hard to have to give up:
a low-maintenance life.20. A new hobby I have taken up since my diagnosis is:
Charting. I wouldn’t describe it so much as a hobby but I definitely wouldn’t be doing it if I didn’t have the disease.21. If I could have one day of feeling normal again I would:
I don’t know that I’ve ever felt “normal” so I don’t know what I’d do different.22. My illness has taught me:
My Faith is stronger than it appears and stronger than I feel.23. Want to know a secret?
One thing people say that gets under my skin is: “Here – If you really want kids, you can have mine!”24. But I love it when people:
Just hug me and not try to offer advice.25. My favorite motto, scripture, quote that gets me through tough times is:
God will never give me more than He knows I can handle. Cliché as it is, it’s true. Also, I continually remind myself things can always be worse and there are so many people in this world who don’t have it near as good as I do.26. When someone is diagnosed I’d like to tell them:
Don’t wait to take steps until you’re ready – be active against it NOW! It only gets worse with time.27. Something that has surprised me about living with an illness is:
being able to find someone who loves me through all my insecurities and physical ailments and knowing he loves me regardless of all of it!28. The nicest thing someone did for me when I wasn’t feeling well was:
brought me a cup of coffee and just sat with me and talked about non-related things.29. I’m involved with Invisible Illness Week because:
having one makes you sensitive to just how many people out there suffer and all the different ways we can suffer. I’ve always been pretty compassionate but I’m not nearly as judgmental as I used to be.30. The fact that you read this list makes me feel:
valued.